Mar 11, 2025 · Regina resident Paula Trefiak was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016 and told she only had another two to five years to live. Instead, thanks to a new ALS drug for...

“I am now proving this disease is treatable.” When Paula Trefiak was diagnosed with familial ALS, she chose to channel her experience into advocacy, research participation, and pushing for faster access …

I am proud of my parents Paula Trefiak and Matthew Webb who represented the ALS/MND lived experience community at the Roundtable to accelerate finding cures for ALS/MND and make these...

Mar 8, 2025 · Paula Trefiak has been using the medication since 2016. (Photo source: Biogen) Trefiak is now on a 100 mg dose. “This drug is a drug that [is] specifically for patients with ALS that is...

Aug 28, 2023 · Paula has a familial variation of ALS, and she has lost 27 family members to the disease. Since 2018, she has served as a Community Ambassador for ALS Society of Canada, as well as on …

Paula Trefiak shares her experiences living with ALS alongside ALS community members, Leah Stavenhagen, Steven Spangenberg, and Leanne Sklavenitis at the International Alliance of …

Oct 5, 2025 · The journey with ALS impacts entire families, and the need for proactive care and support is critical. Thank you, Paula Trefiak, for sharing your powerful perspective and being a tireless …

Mar 11, 2025 · Regina resident Paula Trefiak was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016 and told she only had another two to five years to live. Instead, thanks to a new ALS drug for...

Paula Trefiak was one of the first ALS patients to take the drug Tofersen as part of a clinical trial. The Regina resident was diagnosed with ALS in 2016 and told she only had another two to five years to live.

Mar 11, 2025 · Paula Trefiak was one of the first ALS patients to take the drug tofersen as part of a clinical trial. Her experience shows why its approval is generating so much excitement.